This research aims to identify what parents think of the educational services put in place for their children who have Cystic Fibrosis. The research that has been done previously in this area shows that there is a lack of adequate services in school for children who have Cystic Fibrosis and parents feel that their child has a disadvantage in education because of this.
Research in the past also shows that there is a significant lack of attention being paid towards children who are in school and have a life long illness and the services that are in place for Cystic Fibrosis sufferers are not suitable to attend to their needs in education.
This research aims to show how parents feel that the educational services in place in Ireland today are not good enough and how the students are suffering in education because of this. The research also aims to look for themes through each of the participant’s experiences and opinions, to create a detailed account on why parents think the services for their children are unacceptable and how the services could change to help them in the future.