Autism is one of the most difficult and intractable conditions that families may have
to cope with. It is a major cause of stress in families, some of which are immediate
and devastating, others are subtle and are experienced over years. There is no
known cure for autism, each manifestation is unique and needs to be dealt with on
an individual basis. The aim of this study was to examine what families want for
their child who has autism and to look at how the lack of autism specific services
impact on the family both now and into the future.