Experiencing services for autism spectrum disorder in Ireland: The viewpoint of parents
Authors
Chmara, Paulina
Issue Date
2023-05
Degree
Msc in Applied Psychology
Publisher
Dublin Business School
Rights holder
Rights
Abstract
The aim of this qualitative study was to explore the experiences of parents of children diagnosed with Autism Spectrum Disorder (ASD) with accessing diagnostic and support services for their children and themselves. 9 participants took part in individual semi-structured interviews online. A data-driven approach to thematic analysis rendered 5 major themes (1) Service-Related Struggles, (2) Diagnosis and Treatment Barriers, (3) Other Struggles Faced by Families, (4) Supports Outside of the ‘Therapy Room” and (5) Desired Improvements. Findings of this study point towards flaws within the current ASD-related service provision framework in Ireland. Long waiting lists, poor communication, lack of support from service providers and delays in accessing publicly funded services were identified as a source of frustration and distress. Support groups and other parents were cited as supportive. The need for increased parent support, education the general population and for parents and improvements in the service-access framework were highlighted.